Membership for this group is $25.00USD per year. Membership benefits include access to our online support forum with our other members, access to our Files and Resources area which is updated frequently, your own personal online journal that can be set to 100% private, updates about the medical research and list of doctors that are familiar with this condition. There is also a private chat feature so you can chat, live, with other members (but this is currently being redone due to security concerns).

To complete your registration for the group and to access the forum, please click the PayPal image below.
You will need to email us at after you have completed your checkout and let us know the username you would like for the forums. You will be emailed a confirmation once we have created your forum account.

If you have any questions, please email and we’ll help you out.