Welcome and Hello!
My name is Jeannie Allen aka Jean Lund. I reside in Ventura California. I started this support group in July 2006 for women who suffer from Persistent Genital Arousal Disorder (PGAD), formerly known as Persistent Sexual Arousal Syndrome (PSAS). I also run private support groups on Yahoo and Facebook.
PGAD is an unwanted, intrusive, non-sexual arousal of the genitals with absolutely no thoughts of sex. While male priapism has been known for many years, PGAD has been largely ignored due to the majority of the medical world not yet being familiar with it. My role has been to be an advocate by way of letting women know there is a name for what they are going through and to educate doctors of the reality of this stressful, painful, often debilitating disorder. There is no known confirmed cause or cure as of this writing. (2011) We do believe there are certain components that may be involved which include muscle tension in the low back, hip flexors and outer pelvic region which could be constricting blood flow and putting pressure on the nerve endings. The origin could be physiological such as a neurotransmitter that has back-fired in the brain or from suddenly discontinuing certain medications including an SSRI. Anxiety is common in PGAD sufferers whether past or present. Hormones may also be a contributing factor whether during puberty, child bearing years or during pre or post menopausal which appears to be the majority of the women who suffer.
Symptoms can include restless legs, tingling sensations in the genitals that crescendo to a need for release via an orgasm (which can return at any time) tightness in the lower back, hips and pelvic muscles. Inflammation of these areas is possible due to adhesions from surgeries and should be checked. Other conditions that many women suffer along with PGAD are IC, Vaginismus, Vulvodynia, Adrenal Fatigue, IBS, bladder incontinence, clinical depression and a host of other medical conditions.
What’s perplexing is that PGAD is not the same for every person. We also have had men complain of the same issue but it is not priapism. Since both sexes have nerves and muscles no one can be ruled out.
Because women say they have never told anyone and have been quietly suffering, the reality is that PGAD is a “silent epidemic.” My goal in creating the support groups was to give those who suffer a safe place to network with each other and the courage to speak out. It is my hope that this lends each member enough strength to take the discussion outside these walls to their spouses, significant others, family, close friends and to every doctor they see. I have also provided the tools needed by having information posted that can be printed and carried to doctors, and links to information on other web sites. I want those with PGAD to hold their heads high and feel a sense of relief knowing that we have not done anything to cause this disorder. That we are not freaks of nature. That we deserve to have our normal lives back!
While research has begun, and there are some steps women can take to have some relief, we have a long way to go. Getting involved is one of the most important things sufferers can do.
For my full journey on PGAD please visit http://members.tripod.com/jeannie_allen/id40.htm